Welcome to the Hemangioendothelioma (HE), Epithelioid Hemangioendothelioma (EHE), And Related vascular Disorders (H.E.A.R.D.) Support Group Website.
This site is dedicated to the memory of our dear son, Danny Pollak, who lost his life to this rare and baffling cancer after a 10 year struggle. He fought his battle with dignity and courage, he lived every day of his life to the fullest, and achieved so much. He will live forever in our hearts and our memories. Cynthia and Peter Pollak, September 2008
PARTNERING WITH C.R.A.V.A.T. TO FIND A CURE FOR VASCULAR TUMORS.
C.R.A.V.A.T (Center for Research and Analysis of VAscular Tumors) can be found at CRAVAT Foundation. and has been recognized by the IRS as a public charity. We hope to further our study into vascular cancers, provide additional assistance for members, and perform indepth investigations.
Thanks to donors, both big and small, we have already been involved with several studies into EHE and HE.
Cynthia Pollak, January 2013
When my son Danny was first diagnosed in 1999, I was told there was very little research into this rare cancer. I have set out to find out as much as I can, and to inform as many people as possible. Over the years, I have been contacted by many people, both newly diagnosed individuals and health professionals, who had never heard of this disease before and did not know where to turn. I am happy to have been able to help.
The aim of this site is to inform people with this cancer, and unite them with others. The International H.E.A.R.D. Registry records details of members, to share, compare, comfort and assist each other. Hopefully, by studying all the data, we will learn more about vascular cancers and how to treat them. The Registry has already been the basis of several reports.
Hemangioendothelioma is a very rare cancer, but by combining our efforts, and accumulating as much information as possible, we can share this information, present a strong and combined group to the medical profession and the pharmaceutical companies, make people aware of this cancer, and together we can have our presence felt and HEARD!
Thanks to Aura Carr, mother of Kris Carr (author/film maker of Crazy Sexy Cancer, who also has EHE) for her support with maintaining the H.E.A.R.D. Registry.
Thank also to Michael Tsafas, without whose support this website would not have been possible. Michael’s wife Connie Chu-Tsafas succumbed to EHE in 2006. May her memory be a blessing to Michael, and their children Allison, Benjamin, Marissa and George.
Note - the information and opinions expressed herein are those of the author, who has no medical training. Refer to Disclaimer.